Privacy Policy

Last Updated: February 22, 2025

At FOLLOWT1Ds.org ("we," "our," or "us"), we value your privacy and are committed to protecting the personal information you share with us. This Privacy Policy explains how we collect, use, and safeguard your information when you interact with our website.

1. Information We Collect

When you use FOLLOWT1Ds.org, we may collect the following information through forms and other interactions:

  • Personal Information You Voluntarily Provide:

    • Name

    • Email address

    • State and School District

    • Details shared through the "Share Your Story,” “Contact Us,” or “Request for Guidance” forms or other inquiries

    • Uploaded documents, images, or files

    • Your preferences regarding information sharing and support

  • Automatically Collected Information:

    • General website usage data (e.g., pages visited, time on site)

    • Basic technical information (e.g., IP addresses, browser type) collected for analytics and security purposes

2. How We Use Your Information

The information collected helps us to:

  • Advocate for Change: Identify systemic issues and advocate for better school policies and accommodations for students with Type 1 Diabetes (T1D) at local and national levels.

  • Support Our Community: Provide relevant resources and, if consent is given, connect you with other T1D families for support and advocacy collaboration.

  • Raise Awareness: Share non-identifying stories and data to increase public awareness about challenges faced by students with T1D.

  • Improve Our Services: Use general analytics to enhance our website, resources, and advocacy efforts.

  • Respond to Inquiries: Contact you based on your support preferences or if you request additional information.

3. Information Sharing

We respect your privacy and will only share your information as follows:

  • With Attorneys: If you express interest in filing a complaint or need legal guidance, we may share your information with pro bono attorneys who can offer general guidance but not legal representation.

  • With Advocacy Partners: By request, we may connect you with other parents or advocates in your area to support collaborative efforts.

  • With the Public (Anonymously): If you consent, we may share anonymized parts of your story on social media or other platforms to raise awareness.

  • No Unauthorized Sharing: We do not sell, rent, or share your personal information with third parties unrelated to our advocacy mission.

4. Data Security

We take reasonable steps to protect your personal information. While we strive to use acceptable means to safeguard your data, no method of internet transmission or electronic storage is completely secure.

5. Your Choices and Rights

You have control over how your information is used and shared. You can:

  • Access Your Data: Request a copy of the personal information we have about you.

  • Update or Delete Information: Ask us to correct or delete any personal data.

  • Change Sharing Preferences: Adjust your consent regarding how your story or personal information is shared.

To exercise any of these rights, contact us.

6. Cookies and Tracking

Our website may use standard cookies and tracking technologies to analyze website performance and improve user experience. You can manage cookie settings through your browser preferences.

7. Minor’s Privacy

FOLLOWT1Ds.org is intended for use by adults, particularly parents or guardians. We do not knowingly collect personal information directly from individuals under the age of 18. If we become aware that we have collected personal information from a minor without parental consent, we will take steps to delete that information promptly.

If you believe that a minor has submitted personal information through our site without proper consent, contact us.

8. External Links

FOLLOWT1Ds.org may contain links to external websites, such as resources, media articles, or partners. We are not responsible for the privacy practices of these third-party sites.

9. Changes to This Privacy Policy

We may update this Privacy Policy periodically. Any changes will be posted on this page with an updated effective date.

10. Contact Us

If you have questions about this Privacy Policy or how we handle your information, please contact us.